The art of the god   By mother of Mr.Eiji's friend

 

At the day father and mother (family name Nakajima) who was just pregnant came the meeting of down syndrome. They know their baby was down syndrome by examination. After doctor's notice, they researched various things. The nurse who had the brother of down syndrome advised to go to the meeting.

Nakajima family wept looking at many children of down syndrome. "Why do you weep?" I asked, the father said, "All children are active." The mother said, "Although my mind is not correct, the baby is moving cheerfully in my body." It was just the dance lesson. Parents wept looking at that scene. The children danced with their pace. Mr.Eiji who was fifth grade came to Nakajima parents and said, "Who is your child? I will play with the child." The mother answered, "My child in my body yet. My child is not born." Mr.Eiji said, "I am sorry. I can't play together the baby in the body. But I will play with your baby. It is promises, the baby." This Mr.Eiji was just the brother of above nurse. He was young leader on the meeting. Nakajima parents spent looking children for three hours from open to close. "All children are pretty." The father said, the mother said, "Yes they are pretty..." "Maybe it will be hard, but there are more happy than sad if you bear. You should decide to bear or not by talking deeply. I think the bearing is better, but this is the private thing for you. When you bear, please come here. We always welcome." I said so, the father answered, "Thank you very much. Please in the future." Then Nakajima parents went back.

Below Eiji's sister told us.

In conclusion Nakajima parents decided to kill the baby. The father said, "I feel you should bear." But the mother refused. I heard she considered that growing was too hard. Then the father said, "You mainly grow the baby, so I obey your decision."

At the operation the mother wanted doctor to be general anesthesia. She decided not to remember the moment killing her baby. The doctor putted her under anesthesia, the operation started. The moment he just treat the baby, the mother cried who slept by general anesthesia. "I bear! Let me bear! Please!" The mother who didn't have the consciousness cried. The doctor was surprise and stopped to treat. And he asked to the mother "You want to stop?" But answer was none. The doctor stopped to treat with being at a loss. Eiji's sister who supported the operation said, "It's the art of the god."

The mother who waked up from anesthesia asked said at first "My baby is alive, isn't it?" Eiji's sister answered "Surely!" "I am relieved...I maybe tried the strange behavior. I looked when I feel faint. Mr,Eiji hugged my baby in his arms. Two children play happily with the joy. My husband and I cried looking at that scene. We told it was better to bear. I just give up the best happiness."

Then Nakajima parents who got the cheerful son came the meeting and let Mr.Eiji hug in his arms. Mr.Eiji and the baby smile best. And parents smiled with tears. "It is better to bear." I get the full words from the mother.

 

 

Letter   By Shouta's mother

 

I'm a nurse. I was bore the baby of down syndrome. I got the celebrate goods from the nurse friends. And I got the letter the title "Dear Shouta selected by the god." The contents were "Shouta is selected by the god. Your mother is tender and adored from all nurses. Such mother wept looking at bore you. But your mother was settled after your birth, and hugging you in her arms and smiled. [He is pretty.] She wept saying so. We wept too. You are really pretty. You are the idol of our nurse. When you can read this letter, you know you are down syndrome. You should spend free not too much power. You have the healing power from the god. The power is happy for the around persons. Take care of your father and mother. You want to look at your mother's smile. If you are good boy, you can look at her smile. There are things that you can't do the same for the normal children. But not be depressed and fight. Your father, mother, and we support you. All support you. Don't forget our presence. All for you. We support you with full power." ...I was moved and wept. Thanks for everybody. But the letter was difficult for the baby. Nurse friend said, "The letter is difficult because of praying his growth. We hope he grow to be able to read this letter. We write for the time, although we are not sure when."...I thought when it would be, I wept with hope. All nurse expected his growth. They hoped the growth as the normal child. I wanted to answer the hope. I thought that.

Twenty years passed, from then. I gave the letter to Shouta. He read and asked me the difficult words. I answered each one. Then he cried hard, although he didn't cry anytime. "What happened?" I asked, he said, "I wanted to look at your smile more. I should try more. I can do more." He cried saying so. "You tried full. I smiled much." I answered. But he didn't stop to cry saying, "I can more." ...He grew very tender man. I was fear that he was too tender to be able to live in the world.

At the day such Shouta brought me the letter. He wanted it to give the nurses. The letter was sealed, so I gave it for the nurse not looking at contents. The nurse read, "Dear nurses. Thanks for supported my mother. I am down syndrome, isn't it? My mother is pollinosis. I understand that if I try hard, my mother is grad. I will try hard more. I depend on the god. For I am healthy. And I can look at my mother's smile more. I try to let nurses heal. Please support my mother in the future. Really support my mother. She can smile. Please."...I heard nurses wept. "He can read the letter." The nurse who had worked then said. "Nostalgically." She said so, and touched my shoulder light. I cried too. His letter was written about me. Since I showed the letter for him, he became trying more. "I want to look at your smile." He tried saying so. I thanked nurses for gave him the letter. And I thanked my son who grew to be able to read the letter, and the god. Thanks very much.

 

 

New Year's card   By Ai's mother

 

I am depressed every New Year's Day. My family is five person's, my husband, his mother, the sister who is fifteen years old, Ai who is eleven years old and down syndrome, and I. That the sister gets more New Year's card than Ai is why I am depressed. Ai says "It looks good, sister" every year. The sister gets 115 cards, and Ai gets 3 cards. This year's result.

This year we plan the campaign for next year. I introduce Ai in my blog. I show the blog to supported school students, the friends of the meeting, and the neighbor children. I get the comment, "I didn't know about down syndrome. We can be friends if she comes my normal school." "Miss Ai is pretty because she tries hard. I want to see her."...My husband wept looking at the comment. "I show this to Ai." He says with great zeal. He is simple.

Except that simple husband, I get next step. I ask to send Ai the New Year's cards in my blog. I tell my address for the people who give the message from my blog. Although it was a little dangerous, my family's principle is doing anything for her.

At August it happened we don't expect. Ai gets summer greeting cards. The cards are fifty. Her sister gets two, so Ai wins. Ai is grad very much. At once Ai writes the answers. It takes thirty days for writing fifty cards. She paint and write one and one, it is art. My husband wept again looking at the cards. It looks bright because she writes hard. "For important friends" Ai said so. They are really important friends.

But the friends are almost her sister's friends in fact. The sister said her friends to write the summer greeting card for Ai. Instead of her. The result is this. The sister is satisfactory for Ai's fifty cards. "New Year's card will come more." The sister said Ai.

Ai looks forward to New Year's Day. "How long I sleep, New Year's day come. The day I write the cards..." she sings so. I can't think these days come at last year. Really thank for the sister.

"Down syndrome let people be happy." I looked that at the blog before. I think it right really. The sister's friends said, "Ai is not my treasure. But the treasure for all persons." All people support for Ai.

The comment of the blog is increased day after day. "I will send the New Year's card!" "I am looking forward to Ai's card." "I want to look Ai's growth."

My husband asks his colleague who have the child to send the card.

This New Year's card maybe life bread for Ai. Her friends increased at a stroke. I can't expect these dramatic changes. I don't stop this direction. Ai will grow more by the card. The importance of the friends. I think that is the best. "I like to write the answers." Ai said. Playing with friends. Although there are friends at the supported class, they are not active, and inferior about New Year's card. That network is much evolved.

My husband's mother asks her friends.

I want to greet next New Year's Day with full smile by gathering all powers. All people are happy not injured anybody. Those nice environments are here. All owes to Ai. I thank Ai again. Thanks.

 

 

Promise   By Kazuya's mother

 

I felt the end of the world when Kazuya was bore with the personality of down syndrome.

He had the brother and sister.

Kazuya grew slowly different to childcare of the brother and sister.

I nearly gave up growing him with the impatient.

Although it was said that the child of down syndrome was an angel, he was a devil for me.

But such a situation the brother and sister took care of him.

"Today, you are rest."

They said so, and helped housework.

They ware good brother and sister.

How much I was rescued!

In such a days, I treated him severely.

I thought incorrect he could not do because of down syndrome.

Just only I grew three children, let Kazuya live himself in the future.

But this thought maybe was unreasonable.

I was realized that by the brother and sister.

"Kazuya isn't an angel. But he isn't a devil. He is just human."

"I feel we don't treat him specially. Please entrust us in the future. We are surely he happy."

The moment my shoulder load was removed.

Kazuya was human. I let him do his best.

"I maybe let him do too difficult."

I was sorry.

Childcare should be my pace. It's OK, if the growth is slow. I think now that maybe is the extreme thought. And it's OK in the future, because of the presence of the brother and sister. Really I am free. Since I think so, I can realize his growth. You pray with your palms held together before eating. And after eating. You say "Good night" before sleeping. Always I can't notice, but you grow steady. I am sorry for not notice. I am a failure as a mother. Please grow maybe slow in the future. I am weak and go to heaven before Kazuya, but it's OK because of the presence of the brother and sister. I can entrust them in the future. I am relieved to entrust. Kazuya, be healthy, individual, and charming adult. It's promise.

 

 

Emiko   By Keishi's mother

It was dark in the future at the birth of Keishi. I was shocked because of the first delivery. I felt the end of the world. I got the notice from my husband. He told smiling. "He is down syndrome! He is really pretty. Mr. down syndrome." When I heard that, I didn't get angry, but I was astonished. It was mistake that I married to him. I have question from there.

But ten years passed. I can't forget that notice. My husband who gave notice smiling. I thank him now. Because if he was depressed, maybe I am dark life now. And I know the one fact. That was my husband cried hard when he got notice. I heard that from my parents, I cried hard after ten years later. Maybe he was most hard although he was so cheerful. "The notice with smiling"...It is hard to do.

Now I just will bear the second baby. The baby is not down syndrome. Even I was not satisfied. Keishi is cheerful. I want to bear the healthy baby for him. Keishi makes folded-paper crane everyday. He made many cranes, although those are not good figures. He made two hundred cranes. Although it will not be one thousand, it is the brave gift. I am really happy. I think her name is Emiko. My family are always smiling after his birth. My husband and Keishi make smiling. Really brave my husband is. And Keishi get the gene of such his father. There are not the laughing of two comedians at any other family. Keishi failed various things. It was amusing. My husband's joke was almost all not amusing, but Keishi's natural failure (maybe sorry for Keishi) is cheerful and let us is happy.

How will Emiko become? I'm looking forward to now. Keishi is like my husband, so she will be similar to me. If so, she will get the amusing not give the amusing. I want her to smile much.

I can understand the personality of down syndrome after ten years from the birth. What they can do and can't do. They have some merits and some demerits. Although the normal child too, we understand such a thing. For the mother who was bore the child of down syndrome, please hold on for ten years. It looks short more than your thought. When ten years passed, your child's personality appears, and you can understand his condition. And please let your child expand the merits. And became the family that is smiling anytime. The small things are OK. There are seeds surely at home. It maybe the ten years for finding out it. You don't sad because you got the child of down syndrome. It looks like getting nice lot. Although I tell these kinds of things, maybe I am scolded because of careless, but I really think so. In fact, the families who have the children of down syndrome think so. Please let your child go to the society. Don't stay home. Surely there are hardships. But the hardships will change the joy later. The hardships make fun. The only laughing are not best. But the laughing are healing us and that are the merits of the children of down syndrome. The smiling notice and the smiling family. All things are connecting the line.

 

 

Agriculture   By Tuyoshi's father

 

My family moved when Tuyoshi was six years old.

I thought it was better that we spent at the country without noise of the city. In Tokyo there many people and Tuyoshi was made fun of. It was sad. I felt we met neighbors in the country, and they understood his disorder.

I was retired the company that I worked for seventeen years, and started to engage in farming. It was very good. I depended on Tuyoshi too. We took off the weeds, and planted seeds. Tuyoshi, my wife, and I spent hard for the ground.

"What do this seed bear fruit?" Tuyoshi asked to me. "The carrot." I answered. So he said with mysterious face, "Will these small seeds grow the carrot?" And said, "But I hate the carrot." "It will be delicious that you grow vegetables yourself." I said so, he answered, "Is it really?" It was very fresh that we work together, because he had not come at my worked company. I didn't expect he spoke well and understood what I said. I felt the time with him was very precious.

And the crop time had come. I was excited. Tuyoshi was too, he asked me many times, "Can I eat?" The crop was smooth. I took off with Tuyoshi who was one year elder. There is less that we could sell at the shops. I felt it was difficult because almost all vegetables ware bad figures. But the mysterious carrot was cropped that one small carrot was between the big carrots. As if it was our family, so we display at the altar for a few days, and we boiled it. And Tuyoshi ate it. "You made it yourself, so it's nice." I said him again. He ate it with the fear. And he said, "...sweet." And he ate it all. I wept because of not explaining. I was free from the fear of moving, I was impressed Tuyoshi's growth, and ate the carrot that we grew with sweat by myself. And he said, "Sweet". As if the carrot was for our reward.

Just then Tuyoshi was one grade at the elementary school. He goes to the supported school. There are the class like agriculture, he acts leader of the class, although he is just one grade. I hear he act good leader. It's good news. When he goes back, at once he joins to grow the vegetables. At the weekend we grow the vegetables together whole the day.

Living at the country is ...nice. Although we cried by sadness at the city, we cry many times by happiness at the country. I can look at my son's growth directly. I feel all times with him. Although I can't guess in the future, we live just now. I feel so. All for Tuyoshi. My wife and I want to let him live cheerful and happy life with not great power. We remember the vow at Tokyo last year. Now we spend in the vow, we feel we really live. Tuyoshi's smile, sweat, and sleeping face. All things shine wonderfully. This shining forever. I can't stop to weep with joy.

 

 

Only one desire   By Kazushi's mother

 

Kazushi who goes to day care center is down syndrome and is five years old. At the parents' visiting day I was surprised looking at him. At the playing lessen he didn't nothing. He just sited down. He remained so without mention by his friends or teachers. I got angry. "Kazushi, play with friends!" I shouted with loud voice. His friends, teacher, and parents gasped together. Then I didn't refrain, I went to Kazushi and said to do like his friends. Kazushi cried. But I said to do the same things because he could do that.

Kazushi played cheerfully at home, so I thought he played that at the day care center too. But at that day he didn't. I had grown him as the normal child, because I hated that he was inferior to the normal child.

The teacher said for me, "Kazushi is shy because you came." ...I can't say anything. I was stupid mother. The teacher tool care of him, he stopped to cry. And the teacher stayed back of him, let him play with his friends. Then he smiled. That was full smile. The result of practice at home appeared. The other parents wept looking at him. I can't stop to cry looking at Kazushi who played the same for his friends. I was sorry because of stupid. The teacher who helped to play at the back of him wept too.

I felt he had to practice more than the normal children for playing as the normal children. But I let him play till he could. I didn't accept he was inferior to the normal children. "I am too hard?" I sometimes felt so. And the opinion was "You should think his pace." But I wanted to prove he could play as the normal children.

All my principle was for letting him go to the normal elementary school. I felt almost all parents who had the child of down syndrome dream for their child to go to the normal school. Although there ware the parents had the different opinion, my opinion was that at least. Why was he inferior as one child?

After the parents' visiting day the meeting opened. I heard how Kazushi spent the other day. "He is inferior a little." The teacher said so honestly. I felt that I could meet good teacher because I thought the teacher was fresh and honest. "But I want to let him go to the normal school." I said so, the teacher answered as if calming me, "How about deciding by Kazushi." The scales fell from my eyes. It was the choice I didn't think ever. Surely it was important to decide himself because it was his future.

At the night I asked to Kazushi, "which do you go to the normal school or supported school?" Kazushi knew the word "Supported school". Perhaps his teacher taught him. Kazushi answered, "I want to go to the normal school that you hope." I cried again. I cried for a long time hugging him who answered to go to the normal school for me. "Thanks, thanks" I said many times, and hugged him. He smiled cheerfully and said, "But I can't." He understood he had the handicapped. He was pitiful. How can I do? My husband says, "The time will solve." I want to do for that Kazushi's life is better. Although I am stupid and the time leave a little, I want to let him go to the normal school. It's my only one desire.

 

 

Girl who grows around her   By Eiko's mother

 

"Girl who grows around her."...The head of the hospital said so.

Eiko was bore with the personality of down syndrome. The doctor in charge was young. Eiko was carried to the bigger hospital because of the doubt of down syndrome and the possibility of the complication.

Fortunately the complication was not, and she came back the hospital. The notice was for only my husband. He told me at once. I was grad. I thought I was grad to marriage with him. It was happy to hear straight more than he bothered because of the hardships. But in fact I was depressed. Although I was OK for tension at the notice, after that I was sad and fear. My husband said that he couldn't guess in the future. There are the days that I spent crying all night.

Then the head of the bigger hospital that Eiko was carried came for me. "Although you are fear because of your baby of down syndrome, it is not unfortunate. She will let you be happy rather. And she is the girl who grows around her."...He said so. I heard the head met and engaged the family that had the baby who had down syndrome or some disorder. He was great, wasn't he? Almost all fear ware removed for explanation of him. He was the reliable doctor as if the superman. "Girl grows around her"...he said he was one of them. "I owe to them for meeting the family. And if I can let the many families relieve, that is my happiness and the happiness of the families. And I grow more for meeting many families. Your baby let many people be happy already after her birth. Various things will happen for you in the future. There are unfortunate things in that. But you can get over that. This baby has such the power. You surely will be happy. Any bad things happen."

Five years passed then. I am happy. I am very happy.

Childcare is not special compared with the normal children. But I feel the growth is a little slow. In fact I have special care because of down syndrome. While I am said her friends and parents grow because of down syndrome in fact. I can get various knowledge and manner that is childcare of normal children and plus alpha.

There is the word that I was said from the teacher of the day care center. "She grows around her."...The same word for the head. I was grad. I hear the other children take the lead in taking care of Eiko. The teacher says Eiko is good for the other children's growth.

The hardships will come in the future. But I think we can come over any hardships. And we grow more after the hardships. Not only Eiko, but also my family, and people around her. Eiko let all persons grow. I feel we will be happy, I can't understand what hardships happen in the future.

 

 

Emptying cheerful   By Haruka's mother

 

I got the notice after one year from her birth. My daughter's name is Haruka. The notice is late, isn't it? I felt many different things for the normal child.

1. She didn't cry almost.

2. She didn't move almost.

3. She didn't similar to anyone.

I examined the gene test at first while I didn't know down syndrome. The result was down syndrome. I was not depressed because it was after one year from her birth. I felt "Well, it became sure..." Various changes happened in home because of down syndrome.

1. I became to do childcare carefully.

2. I cried many times in a dream.

3. My husband was emptying cheerful.

In particular my husband took care of me who was depressed because of the notice and spoke cheerful topics. I was engaged very much. But I was not depressed so much. Be relieved.

Haruka grew slowly. But l surely felt she grew undoubtedly. The happiness that she could become to do something was special. I was told from the elder mother who had down syndrome child, "Don't worry although her growth is only slow."

There ware precious meeting after her birth. The elder mother, in particular my husband's superior (he had the child of down syndrome), tender healthy nurse, her friends at the meeting of down syndrome. I couldn't get these tough ties if Haruka was not bore.

My husband's superior had child ten years old of down syndrome. My husband knew that, so he consulted his superior about down syndrome. Then he learned care for the wife. He was said, "Surely the cheerful family is better." In fact, I met his superior, so he was really cheerful. But his wife said that he kept high tension now, but when he got the notice, he cried hard. He cried, cried, and he thought he retire his company. He thought moved to the country and lived only their family. The reverse of the depression let he is cheerful.

In fact my husband cried all night at the notice day. And next day, he consulted to his superior. I think you should cry at the notice. You cry, cry, and the tears are dead, and then it is start. Although many hardships come, the happiness is deeply. I don't think we are unfortunately. Many families that have the child of down syndrome think so. I feel really happy. I must thank for Haruka.

Resent my family's condition are below.

1. We shared the much happiness.

2. I feel the Haruka's growth everyday.

3. My husband cries many times with joy.

My husband cries easily. He cries when Haruka says something, smiles, and tosses and turns. Also out of home. I am in trouble. I don't think he has so much emotion. But I love such a husband! All is for Haruka. All of my family moves at the center of her. My husband and I think that Haruka will be happy. I think we must be happy for that. I feel happiness for my husband' emptying cheerful.

 

 

Quarrel   By angel's mother

 

My daughter of down syndrome is nine years old.

She quarreled rarely with her grandfather (sixty eight years old) who played usually with joy. "You said to bring the confectionery!" "I am sorry I forgot." "I hate you!" "I am sorry." ...I thought it was peaceful quarrel, but it was not just quarrel. In fact grandfather cried. "Don't cry!" my daughter said. "Sorry, sorry" grandfather apologized. "I don't need confectionery more. Be cheerful!" "Thank you, thank you."

Since then she doesn't get angry with tender, if grandfather angers her. Before she thinks grandfather is her friend, but now she treat him as old man. This growth is funny. The scene that the child who is nine years old takes care of her grandfather. She treats him, massages his shoulder, speaks with loud voice, and helps at the eating.

In fact I advised her, "He is old, so he forget something. Be tender for him." After that, she learned old care watching TV program. Grandfather is complex. "I am not so old"...he said so, but he looks like happy with love of her tender.

The children of down syndrome are really honest. They don't know the doubt. Pure. If I look such a figure, I am happy, but there are the fears in the future. She is too pure, so maybe she will be tricked or injured, I worry. I feel I must protect her in the future. Maybe she can't live herself. But it is OK. I protect her. She grows slowly, so my love is more and more.

The late growth was my worry at first. But now I feel the time that child is most pretty continue forever, so I am happy. She laughs tiny things, although she is nine years old. When my husband farts, I hum out of tune, and grandfather chokes over drinking the tea, she laughs with loud voice. The laughing is cheerful for us.

"Angel"...the children of down syndrome is said so often. I really think so. Is there the more pure child? She has the cheerful power that changes the atmosphere. She gifted the innocent that everybody loves her. The nature that she let people grow.

Although grandmother has died, the time that grandfather will die come. I worry about that. That is maybe in the long future, but she can be an angel or not then. She will be bored baby, as the tension will break. I worry. Please be an angel when grandfather will die. He hopes so too. I must teach her that the person dies, till his death. This is the education. The person will die. How does that? There are many things that are more important than the arithmetic or Japanese. Those are not taught at the school. Our family teaches that for her. I teach the die for an angel.

 

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