Down's syndrome

Pride By twins

My family has three children.

The first sister who is ten years old, the second sister who is eight years old and down syndrome, and the brother who is seven years old.

The second sister and the brother have grown like twins from their early childhood.

The brother was steady, and he took care of the second sister.

For example, at the parents visiting day their teacher said, "Let's take a picture", but the second sister continued to play toys. Her brother said, "Let's take a picture!" and let her stand in line.

But the second sister didn't depend on him everyday. Their grandfather said, "They depend on each other".

This word was funny at the time, so our family laughed. But I casually felt that we laughed him who was depended on the second sister because of down syndrome.

...This is the question isn't it?

The domestic prejudice.

We maybe injured the second sister's pride.

After then I watched them carefully. It was like that I stepped on thin ice.

It would unexpected be just fit, I found out the merit of the second sister.

For example, she knew that she was the elder than him, so she led him. When we went to the bread shop, she took the tray and the grasp instrument and said, "I hold this (the tray), so you grasp the breads by this (the grasp instrument)". He was grad to grasp the breads by that he got the role. Such the situation ware developed everyday. There was the situation that she upset the tray. Then she instructed him, "Pick up with me!" She sometimes failed, but next instructions ware very early.

When his height was higher than her, he didn't obey her instruction. So she often got angry by the stress.

Then I asked him to obey her instruction. He obeyed her instruction mildly. So, she was grad to instruct him with great leadership. She tool care of him well. He was behavior with her hoping. I told him that she is down syndrome at these days.

"They depend on each other"...I feel that it is the interesting relationship. I think so even now. But this is not prejudice, they depend on each other by increase the merit of them.

And it is important the present of the first sister. The second sister is influenced very much. She treats that for the growth bread.

In conclusion, I want to say that please not injure children of down syndrome, and develop the their merit. The merits surely exist. And the presence of the sister or the brother. This is important.

Each of the notice By Emi's mother

How was your notice?

In my case, my doctor said my husband after a week. My stupid husband didn't say to me. My baby and I left the hospital without any complication.

After three months the hearth nurse came my home and said, "Emi is down syndrome"...I was only with mouth open because it was my first notice. Why was it now? I remembered only to say, "Emi is so..." with mouth wide open. The hearth nurse said the other things, but I couldn't remember that. I only thought how I told to my husband.

Then, my husband and I ware unusually. I thought I had to say to my husband, he thought to tell the notice...now I think we ware stupid. On that particular day, we watched TV program about down syndrome. He chose the channel for the notice. "I want to buy the down jacket!" he said so. You couldn't tell by that way!

After about six months I wanted to celebrate for six months of the birth. I bought the cake, we sang happy birthday, and Emi was grad very much. I let her eat a little cake. She smiled cutely. "Emi is really pretty, isn't she?" I said so to my husband, he said, "I have a topic." "What?" I said so, he answered, "No, no, it's OK." I felt "He knows". If I thought deeply, there ware no doctor who didn't the notice, so the doctor did the notice to only my husband, then I doubted him.

At that night we slept on the narrow bed, then he started to cry. "What happened?" I asked him, he said, "I will tell really", so I said, "Welcome", he told, "Emi is down syndrome!" and he cried hard. I answered very cool, "I know." I asked him, "Whom did you tell from?" he said, "From the doctor!" "When?" I asked, he said, "After a week of the birth". "Why did you tell me at once?" I asked, he said, "I felt that you are shocked!" Then he asked to me, "Why do you know?" so I answered, "Before three months the health nurse came and said." "I see!" he said and stopped to cry. "I'm sorry!" he said so, I answered, "It's OK. Only down syndrome." I think so really. Only down syndrome. The care-child is the same for the normal child. And Emi has no complication. I said to him, "You think too serious" and he started to cry saying, "Emi is down syndrome!" "If you want to cry, cry. But I will not be injured. Put your mind at ease." I said so, he said, "If so, it's better to say early!"

...My husband is stupid, but it is inside out of the tenderness. It was tenderness that the doctor said only my husband, and it was also tenderness the health nurse came, and then Emi grows with our tenderness.

I often think how I feel the notice at a week after her birth. I think I would be injured. And I would cry. If I think so, my notice is success. I feel so. I feel that stupid my husband and stupid I ware overcome the notice well. I want Emi to grow without the stupid character. But stupid is better in the world. Your notices ware various. Then you are maybe injured, but after that, it will be good memory. The notice that everybody's tenderness was involved. It is the big turning point. Let's enjoy it! Surely it will be good future.

Jump to the world By Hiroko's mother

My daughter, Hiroko is five years old and down syndrome. My family went mountain climbing in summer. My husband carried the apparatus with Hiroko on his back, and I climbed after them. That was like hiking, so it was easy for the physical strength. Hiroko was carried on his back, so she could look at me. She smiled naively. She said, "Kyakyakyakya". She was pleased that it was cool and vibration by my husband's walking. We ate hot spring eggs at the top. Each one ate one egg. "Hiroko, do you eat the egg?" my husband said, Hiroko answered, "Yes". For a while she started eating the egg, she was hard. I let her drink the tea in hurry. Then she was well, and said, "More". I was surprised that she choked on her egg. But my husband had said me to prepare the tea before going out from home. He researched there are eggs at top, so he thought he want to let Hiroko eat the egg, then he advised to me to bring the tea. He was really reliable.

When we relaxed at the top after eating eggs, the foreigner came and took a picture of Hiroko. " (In not fluent Japanese) Is she down syndrome?" the foreigner asked. "Yes." My husband answered. "I took her picture, is it OK?" "Yes" Hiroko answered. We laughed with joy. Hiroko imitated his father. "Can you speak English? That's good!" the foreigner was grad. The foreigner also said, "Children of down syndrome is said [angel]. They let the people around them be happy. My niece is down syndrome too." "We ware the companion!" my husband said so and shook hands with him. "Really cute, what is her name?" the foreigner asked, my husband asked, "Hiroko". Then the foreigner said, "Oh! Hiroko!" and stroked her cheek. Hiroko was surprised a little, but said with smile, "Thank you!" We ware surprised because she said English, we couldn't understand where she learned it. The foreigner was surprised more than us and cried, "Oh! Grate!" Then Hiroko was surprised at his over reaction. We spent happy time for the foreigner.

The foreigner showed us the picture of his niece. His niece was looked like a foreigner, and her face was very pretty with down syndrome. I felt that this pretty face was common in the world. And her family ware around his niece. "Pretty" I said, so the foreigner wept and said, "She will be operated soon. I worry." "It's OK! Hiroko was operated, but she is very fine!" my husband said clearly. The foreigner wiped off his tears, and left saying, "Thank you for good meeting."

I found out the merit of down syndrome again. The common personality that is the same to the foreigners. Hiroko is jumped in the world. It was the mysterious time that Hiroko said English which she learned while we weren't looking. The meeting is the gift from the god. At my memory, the various meeting ware after her birth. I remember the all meeting are happy for Hiroko, we parents, and the people around Hiroko. I think Hiroko is protected from the god. Her operation was very hard. But she is alive. It was owed to go mountain climbing and to speak to the foreigner. "Angel", I am impressed that the foreigner said.

The god, please be blessed for Hiroko. And the operation of his niece will be success. I pray from the bottom of my heart. And be happy the persons of down syndrome in the world!

Understanding By the sister of twenty

I am interested in "The understanding".

My brother who is twenty years old is down syndrome. He is twelve years younger than me.

But I am not ashamed. He is really pretty brother.

I am interested in his understanding from young days.

He didn't touch the toys when he was zero years old.

But he played the toys cheerfully at one year old, so I thought he was the same for the normal children.

I felt he could understand the words at these times.

"Would you like to suck the milk?" I asked, and then he behaved to suck with his mouth moving. He understood the words, so my family ware moved. My mother cried. "I am sorry that I couldn't bore healthy body"...my mother's pet phrase. "It's not avoided. He understands the milk, and he will grow up in the future", so we encouraged my mother. But all those times, the brother smiled cheerfully. Therefore my mother was moved and cried harder. I wept too. At that time he was one year old, so I didn't think he could understand his mother's pet phrase. But he really smiled, so he surely understood it. I felt he understood not the words but the aura. He is mysterious.

At the end of two years old, he could speak the words. The first word was "Thanks". When I let him suck the milk, he said "Thanks". When I changed his diaper, "Thanks". When I played with him, "Thanks". I was grad to do for him. In fact this word was that I taught him carefully. Because my mother couldn't stop to say her pet phrase, I taught for the hope. My mother cried hard with joy, when she heard at first "Thanks". She let him suck the milk crying. He smiled saying, "Thanks". He was just like an angel. He could say "Thanks", when the word needed. I also thought he could understand the gratitude. Although I understand how he understood, but he had the understanding for encouraging his mother at least.

Now he is eight years old, and goes to the supported class of the normal elementary school. He said once, "I hate". He understands his position and the difference for the other children. My mother starts to say the pet phrase again. He encouraged her, "You are not wrong". All my family was moved and cried by his toughness. I can't suppose his understanding. I think also that his understanding is much more than the other children. I feel, instead of the low growth, he can understand the aura.

I'm looking for how does he become at the adult. I think he will be the absence of the hero who heals around him.

Now I learn the psychology at the university. I am interested in the child psychology. In particular I am interested in the psychology of the handicapped children. I can find out my future by my brother. The psychology is good for me. I think that if we can understand the mind of the child, it will be better for growing. My dream spread more. Thanks my brother!

SENRYU (like HAIKU) By Miu's mother

My daughter of down syndrome made "SENRYU".

"Mother father thanks".

She wrote it on the paper politely.

You could have written the wards.

You memorize the character.

I want to thank you too.

Although I have hard days after your birth and this is a little thing, I am grad to look at this SENRYU and I can't read the words by my tears.

Thank you very much.

The normal children can remember the character easily.

But Miu can't.

Because of that, I feel grate joy by that you can write the character.

Moreover that is SENRYU.

The number of the character is wrong, but it's OK.

I am moved you put the most grad word "Thanks" in your SENRYU.

Maybe the normal children can't write moved SENRYU easily, can they?

That is my daughter' pride.

Park debut By Yasuko's sister

I have the younger sister.

Now I am twenty-six years old, and she is three years old. She is like my child.

She was bore with the personality of the down syndrome. I was surprised at hearing that, but three years have passed and we spend really peaceful days.

I live at the distant place. So my parents tell me sometimes, "Please take care of Yasuko". They are old, so they worry about the future. I weep a little hearing that. But I encourage them "Trust me. Don't worry about that, and live long."

I have some trouble. My parents ware shy and they don't go out with Yasuko, so when I go to their house I go to the park with Yasuko instead of my parents. People who don't know she is down syndrome take to me as if I am the Yasuko's mother. Then I surely tell every time that Yasuko is down syndrome. I am not ashamed that, and at the accident (for example she goes to the park alone) I think her neighbors take care of her. People who listened to that she is down syndrome feel certainly sad. But I answer cheerfully "I am never depressed, although she is down syndrome. Because she is really my pretty sister."

Yasuko didn't play with the children of the neighborhood at the park while a time. Yasuko was shy too. Because she didn't go out anytime, she was uneasy going out. "Yasuko, let's play with the children of the neighborhood!" I said so, but she didn't play. Then children ware tender, and said, "Let's play with us" If Yasuko was said so, she played with them. I think that is the result of the penetration about her gradually. I feel it is better to open about her. I think really so. (People who have a child of down syndrome, please open about your child. Maybe you feel hateful at first, but it will be better surely.)

Some day, I went to the park with my parents, when Yasuko played with her friends. "Well, she plays with her friends. Her friends don't worry about down syndrome." I said so, my parents cried. "It's good, good." They said so crying. "Now, you let Yasuko go to the park." I said so, they answered crying, "It's better..." I encourage them "Pull yourself together!"

But the condition didn't well. I went to their house sometimes, and let Yasuko go to the park. And with my parents. I reported to the mothers of the children at the park, "They are Yasuko's parents." My parents ware ashamed a little at first, but they ware determined to make a speech for them. Because the mothers are very young, they take care of my elder parents. Although the relationship is unstable, my parents ware the park debut.

One day, my mother called me. She reported with joy "Yasuko said that she want to go to the park herself". She called crying. I wept too. The usual thing that child plays at the park is the big news for my family. Yasuko will grow slowly. My parents will grow too. Me too. My family becomes the same, as Yasuko is in the center. I'm looking forward to that Yasuko makes the big news in the future. I hope all good news.

Be like mother By mother who is like her child sleeping face

Does the face of my daughter who is down syndrome take after her father and mother too?

Her friend of down syndrome is ten years old and like her mother clearly. When I said that, her mother was so grad. In the world faces of down syndrome are the same, but they having personality and different face respectively. I think that because their father and mother influence that, and they inherit from their father and mother.

My daughter is three years old. She is said often that she is like her father. It's sad because she is female. We parents can't understand that she is like her father, but the other look so. If someone says that, my husband is grad very much. He smiles like a younger boy. And surely he weeps in the bed at the night with joy and worry. We have some trouble about down syndrome. He is supported by that she is like him.

Is she like me? That question is depressed me everyday. I am injured a little. I have asked my husband who cried in the bed, "You are grad to be said like her. She is not like me, is she?" He answered carefully "She is like you, like you too. Because she is our child." And he said also, "In particular sleeping face is similar." Then I lighted up a little and looked at her face carefully. "Is she like me?" I asked him, he said, "in particular the mouth and nose are similar." But I can't understand honestly. If he said so, that is so.

We spend three years as we take care of each. We ware happy, and I think we can be happy in the future. Her sleeping face is like me, and being up face is like him. It's nice balance. The any child is bore in the loving from the parents, grown by parental discipline, and return the favor parent's done for their child with love. I feel so. I think the stage that we grow her by our discipline has come. Its come only by her growth, and the loving stage has gone. Now it's hard for the discipline. I train my daughter like my husband...It's funny a little. Like I train my husband.

By the way I hate to hear the face of down syndrome. I have a wish for the world. Please, don't say the face of down syndrome. Any child of down syndrome is like father and mother. They have personality. Please find out the personality. Surely they have only their face, but the personality of their mental. Not treat the same.

If I say so, we can't avoid the limit of down syndrome. But I am OK. I just am tough because the three years passed. It was passed the stage that I was injured my daughter is down syndrome. Now I pray only the healthy growth of my daughter. Her personality of mental is also like father and mother. Crying easily is like her father, getting angry is like me. I analyze so.

I hope she grow hurry. If she grows more, I feel she will have the personality and more like parents. Then I can love her more and train more. I am looking for the way that she will similar to me. Because I think she will be like a person who loves her, I love very much now.

Any way I am grad to hear she is like our parents. I am encouraged. I think that I didn't worry or depressed if she is the normal child. But this against situation will let my love be tough, and we enjoy more everyday. Early she will be like me!

Taro By grandfather

The pretty grandson is down syndrome.

I am grad to hear that he says "Grandfather, grandfather" and I think that is miracle.

When my grandson, Taro was bore, he was the first grandchild, so we had the big event with our family. I can't forget the expression of my daughter (Taro's mother). She was grad, but worry in the bottom of her heart, so she didn't smile cheerfully...then my wife and I was not knew, but she was done the notice of down syndrome. In that case, we did the event. I let my daughter have a hard time. The tears that she weep in the event, how was that for? She had to do notice for us, but she couldn't do that on that situation. She was in the hard dilemma.

We heard about down syndrome by a son-in-law not my daughter, at a few weeks after the event. We can't do anything. Although we did the event, he is down syndrome...we think so, because we have old thought. But a son-in-law said he is grad to do the event, although Taro is down syndrome. And he said his wife is also grad. Then we ware explained about down syndrome deeply.

My daughter was shocked hardly because her baby is down syndrome. A son-in-law was done the notice from the doctor, and he told to my daughter. Then we ware grad to Taro's birth and prepare to open the event, so they couldn't do notice for us.

My wife and I went to meet Taro and my daughter later. I held Taro in my arms. How small and soft he was! I couldn't believe that small grandson was down syndrome. We met my daughter with a distance. She has been active girl, so she said and consulted to us anything. Such a daughter didn't say now. This was very hard situation that was understood only by our family. "It's OK, he is down syndrome." My daughter said. I answered "He is pretty first grandchild, so take care of him carefully." That's all conversation at that time. On the other time we didn't say in front of Taro. When my wife and I went back, a son-in-low said, "It's OK to meet on the other time. I will support you. Entrust me for Akiko (my daughter's name). We can't be depressed for a long time." He is very reliable.

We have such a past. And we live in now. Taro is six years old and says to me, "Grandfather, grandfather". Because a son-in-law and my daughter both work, so they live with us. Therefore, I live with Taro all the day. We went for a walk every evening. Because neighbors know Taro is down syndrome, they treat him with the tenderness. They all support Taro. I feel the strong support. I am moved by the Taro's power that he can be on his side not only his family, but also his neighborhoods. This is the miracle, isn't it?

I hear the children of down syndrome bear one of one thousand. Is that because one child can let one thousand people be happy? Therefore all person is happy. Although I thought that was the trick of the god, now I feel he is the gift from the god. Taro will grow more, and he can let a thousand people be happy. I hope he will be active boy like his mother as an angel bore from the god. And I hope he will be a gentleman like his father. "I am really happy now!" I say to Taro every time. Then he smiles happily, nothing can take the place of his smile. I believe this happiness is continuously forever.

Warm environment By Arisu's mother

Arisu belongs to the normal class of the normal school.

I thought this is usual, but it seems very rare.

Usually the children of down syndrome belong to the supported class or supported school.

But Arisu can't spend like usual classmate.

She can't study like classmates, and thinks difficulty of the physical education and music class.

She can't eat even at the school lunch like classmate.

But she can belong to the normal class, because her classmate support.

Miss F who teaches the study at the rest time, Mr. J who runs with her hand together at the physical education, and Miss I who help to wear the uniform at the school lunch.

Arisu can spend at the normal school by supporting of classmates.

Her teacher appreciates that such classmates are precious.

Although I don't know how long she can study at the normal class, those friends will be her friends in the future.

It seems there is the warm environment of the warm classmates.

The center is my daughter Arisu.

I weep thinking that Arisu lets classmates be tough, tender, and flexible.

Thank you Arisu for your birth.

We feel very happy because of the warm classmates.

P.S. Arisu changed to the supported school at six grades. She cried hard. But her new classmates said, "Warm comes after the end of crying." So now she is grad to go to new school. She said new school is better for her. Her friends at the normal school come to my home sometimes. Arisu wept because of thinking of her position. She accepts her handicapped. It is the proof her growth. I wept too, and hugged her in front of classmates. Then her classmates cried and said, "Arisu becomes normal."

Funny trial By baseball

I have the daughter who is ten years old of down syndrome.

She likes the game very much. In particular she likes baseball game. I play the game with her, but surely I lose. I like looking at her expression when the game over. She smiles with joy, but she is kind to me.

But she plays versus the computer, she loses always. The computer through the varied ball.

So I play with her, but I can't play when I am busy. So I decline carefully, then I think she cries, but she helps my housework. And housework has done early, it is born the time to play.

It is the moment that I feel her growth. At the old days she cried when I didn't play with her. But she can realize that crying is not the best choice. It's herself that she helps the housework is best. I didn't say so. She can get the power to think herself! I told that to my husband, he cried in the bed. He cried without the voice.

At Saturday and Sunday my husband plays with my daughter. Because he is more unskillful than me, she plays without full power. In conclusion he loses, she laughs very much. She laughs very cheerful, playing with him not with me. What is this difference? Perhaps she knows that I do housework hardly and she helps that, so she understands I am hard. I feel that I will show her the figure of his working another day.

...And I dare to go to his office with her. I showed her that he worked of sales with the suits. He moves customer to customer by the car. Then she and I moved with him. He visited the customer with us. "Today the parents visiting day?" he was said so. She answered "Yes" without understanding. The funny trial is really this. When he explained his company's products, she listened eagerly. The customer said, "Study a little more (in Japan study means beating down the price)." She said flatly, "I study!" "Not study at the school," I said, so the customer laughed very much. And the customer bought the products. Here her power appeared. The mysterious merit.

Then she understands that his father works very hard everyday. I think that she can understand more than the normal children. After that she plays with him without full power. In conclusion she wins, but she doesn't laugh very much, she smiles mildly.

My husband smiles too looking at her smile. By playing the baseball game, winner and loser laugh each other. Is there the situation these mysterious and nice? The mild and grad life. All of them owe to my daughter. Really down syndrome is welcome! Because I can't get these happiness if she is the normal child.

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