Down's syndrome

Pass away By Tomoyoshi's mother

My son, Tomoyoshi is twenty-three years old. Now, he has a job, and he goes to the local company cheerfully.

He has a painful experience.

When he was ten years old, Miss R who was his classmate passed away suddenly. They are childhood friends and the classmate from day-care center to the elementary school. She was Down syndrome too. I can't find what I explain. But the teacher said, "Miss R passed away. We can't see her ever. I regretted, but this is fate. It's sad, but see her off with a smile." Tomoyoshi see her off really with smile.

We held a quiet funeral for her; there was not Miss R at next morning. "Where is Miss R? ", Tomoyoshi asked me. So I told "She passed away, so we can't see her." Then he said, "I want to pass away". There her sister appeared and said," You should not say to want to pass away easily. If you passed away once, you can come back never. You can't see your friends. R wanted to live more. Thanks for your live. " Tomoyoshi became under a cloud.

R's sister continued to say, "...spend with smile. It's the R's hope that you live with smile. And ever." Tomoyoshi said, "OK! It's my pleasure to smile." and he smiled obediently.

I surprised that Miss R's sister was sounder than my image. Although I can't know Tomoyoshi understand how Miss R passed away, I think he accepted her death for the moment when R's sister persuade at least.

He went to the school with smile ever since.

Now he works at the local company. Surprisingly, his superior is R's sister. This is fate too. I heard later, that she works at the same company by chance, and changed the section, because Tomoyoshi has came. I heard that she sometimes burst into tears, because she remember Miss R. She says that she is satisfied with Tomoyoshi's figures, remembering Miss R. Tomoyoshi is really blessed. I think because Miss R watches him from heaven.

Reliable son Keita' mother

My son Keita is seven years old, but reliable.

This is the story when my husband and I quarreled about two years ago.

My husband asserted that Keita should go to the support school, but I asserted that he should go to the normal school.

It was just time limit for judging, but we worried and were not able to decide.

The result was the quarrel between husband and me.

We quarreled with a loud voice, although Keita was sleeping at the next room.

Then Keita waked up and said, "Why do you quarrel?"

Time limit was come, so I worried but said all to him.

"We discussed about your school. We must judge which go to the support school or the normal school. It's hard to study at the normal school, but your friends go there. Dad said you should go to the support school."

Because we didn't say clearly Keita that he has handicapped, so I don't know he was able to understand how extent, but I told all.

Keita said just, "I will judge by tomorrow."

He went back to his room.

Tomorrow morning my husband and I ate the breakfast; Keita came and said powerfully, "I judged the normal school."

"I'm sorry for dad. But I try to study at the same school with my friends", Keita was saying so with tears in his eyes. His eyes were red. He was like stay up thinking. He worried because my husband's and my thought was different. I came to the conviction that he was able to study at the normal school because of his confidence.

"So, it's judged the normal school!" I said and look at my husband, then he was tears in his eyes too. Because he didn't know by busy works, Keita has grown more than his image. So, my husband cried manly.

Surely, Keita goes to the normal school cheerfully. But he whines sometime.

Don't mind By H.F

She had an operation for the heart at two years old.

Younger sister, she is in the fifth grade.

She went to the school cheerfully.

She overcomes various hardships by convincing herself "Don't mind!"

She doesn't know that the wards "Don't mind" are English.

When she wet the bed several years ago, older sister said, "Don't mind!"

She likes the words since.

When she can't understand the study, she says, "Don't mind!"

When she was last runner in a race, she says, "Don't mind!"

When she is made fun of from classmates, she says, "Don't mind!"

However she was deeply hurt, by convincing herself "Don't mind!"

And she teaches her classmates the words.

When her friend makes a mistake, she says, "Don't mind!"

When her classmate is bad at the horizontal bar exercise, she says, "Don't mind!"

After she is made fun of from the other classmate, she says to them, "Don't mind!"

Although she says sometimes at irregular timing, she grows robust by those words.

Now, when she fails, the classmates say for her, "Don't mind!"

There is no one who makes fun of her.

Instead, they say, "Don't mind!"

It's the amazing at the school's field day.

She was last runner by tumbled over, many her friends say "Don't mind!" and the spectators say, "Don't mind!" They know that the words encourage her. I cry happily at the school's field day and the parent's visiting day. All say for her "Don't mind!" Recently, I feel this words for me too. When I was tired, "Don't mind!" Good words.

Rebellious age By the woman who has stupid husband

My daughter is eleven years old, and is now at a rebellious age.

She leaves something on her plate. I say, "You mustn't leave anything on your plate!" But she says, "It's not good."

She is watching TV at long time. So I say, "Don't watch TV!" But she says, "Troublesome."

She changed bad girl who was very obedient child.

I said to my husband, he said, "She learned many words." And he praised her very much.

Stupid husband!

But she learned many words for this several months.

The words are imitated TV program and used among her friends.

Maybe this is able to say the proof of her growing.

I was happily that she was able to say, "Mom" and "meal", but recent words reflect her emotion.

I weeps I know she can express her intentions.

I can know her emotion!

I can't image so, when she was born.

Surely, she hurt my feeling saying, "It's not good" "Troublesome". But I satisfied to know that she feel so now.

At the same time, I thought my husband was stupid, but I touch his words.

"She learned many words."

I should obediently be delighted.

Because she is growing.

I can feel her grows.

Last hope By Kazuko's mother

The life is limited.

I felt so at the time when I had Kazuko.

I thought Kazuko was weak, so she cannot live a long at her birth.

Such a daughter, Kazuko becomes ten years old now.

She goes to the elementary school cheerfully.

She belongs to the normal class.

She has many friends, and a boy who she loves.

By the way, Kazuko was carried at the hospital by the ambulance because she chocked on the lunch at nine years old.

I hurried up to the hospital, and then she was unconscious.

The nurse called her name very often.

I run into there, and called "Kazuko! Kazuko!" continuously.

She recovered consciousness for a while by removed the foods.

I surprised really then.

To eat, daily ordinary behavior.

In such daily behavior, there is an unexpected danger.

I felt the life is limited again.

Fortunately, she was just hospitalized a few days.

After that, I let her eat lunch by tearing into pieces.

No way to eat late from other children.

By the way, a boy who she loves saw at the hospital when she was at the hospital.

He is very tender and eats lunch slowly because Kazuko eats slowly.

Because he thinks Kazuko is made fun of or drops her shoulders.

Really tender.

The fact is that his sister has died by the traffic accident. He lives shouldering the sadness of his sister's death. Who know strongly the life is limited is he.

Kazuko is happily blessed with a tender friend. I hear that she gave the chocolate to him and got the candy from him at St. Valentine's Day. This tender is her last hope. I worry too tender to live in the future. But Kazuko knows herself. She doesn't much happiness. He has a girlfriend. I believe that he can get the special gift from God.

Cake By the scales fall from my eyes

I have a daughter who is five years old and a son who is four years old.

The son is down syndrome.

Once, unusually they are in an argument.

The cause of the argument is getting a cake. I bought three shortcakes, and they ate each one cake, then they want to get the rest cake. Surely it's mine, so I ate at two mouthfuls. After that, they cried like catching fire. They could understand the cake was delicious, but they were not able to understand the number three. I explained "One get each one cake. Share the cakes among us." Then my daughter understood a little, so she started to explain to him. But he didn't stop to cry. So she was at a loss and cried again. I had a headache. After all, I bought two cakes for them. They were satisfied and it was all over.

At the night I said this episode to my husband. So he said, "You spoil them too much." I said, "But, I thought how do they stop to cry." Then he said, "It's mistake to buy three cakes. Two or four are correct. If there are two cakes, they are for children, while if there are four cakes, they are for family. If so, they can understand." "Indeed!" I shouted unconsciously.

After one month, I bought four cakes. Then my daughter and son ate each one cake and put aside the others. My son said, "For mother and father." So I praised him "You understand that!" I felt that the education was changed by some chance. At the same time, I can see his thought, wish, and the other thing. I am impressed him because he lives by thinking much. He lives against the small body and the complication. I was very attached to him.

After another one month, I tried to buy three shortcakes for them. So they ate each one cake, and looked at the rest one cake. My son asked, "for mother?" "Yes!" I cried joyfully. They were grown-up. I gave a cake for my son, and gave the strawberry on the cake for my daughter happily. It was the reward for their growth.

At the night I told my husband. He said, "You spoil them again." So I said, "Because I love them from the bottom of my heart." And he said, "No choice." At the night I spoiled my husband.

Except the adult topic, I think about the cake topic again. I feel that daily life is the education. I think that the parent is tried their ability, when their child has run up against a wall, how to rescue them. It's mistake the thought, "He is accepted everything because he is down syndrome. " The childcare is serious and daily progress. But I feel that parent should be sometimes effortless and look round. And the consultation is important. You should consult your partner, the other family, doctor, and nurse. Don't worry alone. You can get the best answer. Let's enjoy asking and answering. It's your attitude that counts.

Letter By Taro&Kayoko's mother

Dear Kayoko in the future.

Kayoko, thank you for your birth. I write the letter, for you who are just one year old now, and that you will read in the future.

"Taro, the brother who you love is down syndrome. He has handicapped which one-first hundred of the babies have. Do you know the difference from the normal child? But you should not feel so sad. Because it causes a little development disorder.

Taro often takes care of you from your birth. He let you drink the milk, and holds you in his arms. You were brought up by the tender brother.

Maybe you will grow up more than Taro when you read this letter. Someday you reverse him. Then the time that you return his favor. Please take care of him.

Taro often is made fun of because of the figures. But he doesn't cry or get angry never. He is usually cheerful and peaceful. You usually cried looking at such him. You cried, although you are one year old and can't understand the situation. It's a mystery, isn't it? Your father and I worry Taro. Maybe the worry comes across? I think you don't remember that at one year old, you cried hardly only when he was made fan of. Then Taro was desperate to let you smile.

Taro has born with the rare destiny. He cannot escape from down syndrome. Kayoko's life will be rare too. Because you will grow up with him. But don't feel sad anytime. Please take care of him preciously and patiently. Protect him please. Surely your father and I will grow up him as well as possible, but I think there is the teaching only you can. As his sister, take care of him and grow up please. In particular you will be more intelligent than him, maybe he will be hurt his pride. Then consider attentively. Think how can you grow up him not hurt his pride. Perhaps he will know he is not normal at the time. I will think so, but I ask you. That is difficult honestly. Maybe the burden on you is too heavy, because you are the child too. But don't be beaten. Please keep him against the social prejudice. Please tell us anything you have some worry. It's OK that you consult your teacher. Certainly there will be best solution. I will open he is down syndrome. I will let the people around him know he is down syndrome, moreover I wish they support him. So, the people around him know he is down syndrome. Please don't hide, open you too. Nothing of sad.

I will write his good point. He didn't almost cry. He is honest and didn't annoy me. He is cheerful anytime, and likes the animation very much. He excitedly watches the recorded animations. He is the normal boy as if he doesn't have the obstruction. In particular after you born, he didn't cry and has his way, because he can understand he has been an elder brother. He was not jealous and didn't bother, when you born and we took care of you only. He was great boy. I want him to live good life. Kayoko, please take care of him sincerely. Also after we, parents died. Is it load for you? But the time has come. Keep Taro. It's promise.

P.S. Don't take it hard.

Mysterious boy By brother

My brother is down syndrome.

But Don't feel pity for me.

He has the great gift.

1. Born cheer that he is peacefully around him

2. The power realize which we can't notice

3. Innocently

The first gift is easy. There is no quarrel wonderfully if he is. My mother and father don't quarrel anytime. In the old days, they had different principle for him. So they became tense, the baby, my brother said, "A~A~", and he smiled. The smile let them be friendly, and dispelled their fear. My brother is always cheerfully. Anytime he smiles. There is these kind of child isn't it? There are the people who think I am pitiful. But it's reverse. I think pitiful the family that don't have down syndrome child. Because there are no cheerful child. I think so positive. I feel really happy because he is. I am quite convinced.

The second gift is mysterious. He likes the cup noodles very much, and he doesn't leave them. He eats also the small noodle in the soup. It means we must not neglect the foods. It takes long time he eats. It's twice as long as I eat. But he leaves never. He eats all except too hot soup. I learn the foods are precious from him. The other, the friends are precious who I somehow play. He has friends, but a little. I play of course with my friends, I learn the precious from him.

The third gift is innocently. I can't explain well, but he is innocently. He is hard. I learn the attitudes that throw myself into anything. He can paint well. He continues to paint as long as his likes. For example, he draws a sketch of the flowers powerful, although it's different the real flowers. They are artistic. I feel because his heart is pure. He is innocently and pure. There is rarely the child who has these mysterious gifts. He is my pride.

Please stop to feel pity for.

And please understand down syndrome more.

I'm not sad. He is pretty. As you have some personality and gift, he has some personality and gift. Please look at those types. Maybe you find out something.

I think that I will work the job that concerns myself with down syndrome. Although I don't understand what I can, I want to let the people know my experience that live with my brother and notice from him. It's a cold world. Sometimes my brother was cold. But the people who know him are kind for him. Cold persons just don't know. If they know, they understand him. I believe so, and think to grapple with the things that I can now for the future innocently.

See By Kazuo's mother

My son, Kazuo was operated the heart when he was child.

At one time his live was fear.

But he can leave a hospital.

Because he starts to eat the food for baby at that time, after he leave a hospital I let him eat the food.

It's the dessert mashing the apple.

He enjoyed eating all.

After that, he smiled very much.

He smiled with the aloud.

I wept for the power that my son overcame the operation.

I was a single mother, so when I born Kazuo, I thought to commit suicide.

When I was painful, Kazuo's father helped me.

"I heard he is down syndrome. The operation is need? Use this"

I get the money for the operation from him.

I cried because I was in trouble for money.

After my son left from a hospital, his father came formally.

"Do you hope to marriage?"

He said so.

I was resigned to be a single, so I answered follow.

"IITOMO! (The famous word using at the Japanese TV program)"

It's best joke from joyful and I was relieved. I said that with tears.

Now, our family live together happy.

Kazuo gets along well with his father.

I hear that my husband saw Kazuo everyday, when Kazuo was hospitalized and I was not there.

My husband waited and saw when Kazuo waked up or was sleeping everyday.

I heard that from a nurse, so I cried again.

Although I cried anytime, but now I am stronger than him.

I hope my family to live together happily.

A photograph By Tadanobu's sister

I was thirteen years old when my brother born.

I was the hospital with my father at the day my brother birth. I burst into tears naturally when I listened Tadanobu's crying voice "Ogya,ogya".

At the two days after my father was called by the doctor. I went together. The doctor hesitated because I was too, but he said slowly.

"Mr. Tadanobu is down syndrome."

I could not remember the later. I cried bitterly. The handicap "Down syndrome" which I learned at the lecture at the school. It can't be, my brother was down syndrome. My father wept too. We cried continuously without wiping off.

At the last the doctor said, "there are many family that say to the mother after one week. Because too fast is bad to her body, too late is bad to her mental..."

My father said that he could not tell.

And it took one week. Tadanobu remained to go to the other hospital for the examination. My mother worried and said, "Tadanobu has something wrong?" My father could not say anything. "...he is examined", I said bravely. "Tadanobu..." I burst into tears again. Although I thought that I should not have cried because if I cried in front of my mother, I injured her, but I could not stop my tears. "Tadanobu is down syndrome?" who said so was my mother. I could just stop my tears, and looked at her face. She saw me with the clear eyes like the god. "...Yes", I answered. Then my father settled after. She said, "I let you have a sad time. I'm sorry. I'm OK. I can't be defeated by him because he holds out." But she started to cry saying so. And we sobbed.

Then Tadanobu went back to us from the other hospital, I asked the nurse take a memorial photograph. My mother who smiled like the god, my father who was crying still, I who thought something, and Tadanobu who was pure. A photograph was made by our thought.

Tadanobu was operated earlier because of the complication. It was not life and death, but we worried very much.

The operation was success.

It takes five years after that. Tadanobu grows up cheerful boy. My mother takes measures against the situation. I look at my mother; I think that I want to be such a mother in the future. Is my father crying or not? Answer is smiling. He plays baseball and football with Tadanobu, and he loves Tadanobu very much. It's really happy days.

A photograph, we have importantly. Believe of the Tadanobu's hearth.

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