Down's syndrome

Mother By Kaoru's mother

I thought till she grew and called me "Mother".

My daughter. Kaoru was down syndrome with serious heart complication. When she was born, I couldn't look at her face because of tears on my eyes with joy. I was just impressed the crying voice of my daughter. Then she was carried to the bigger hospital. I looked at her sleeping in the incubator at the bigger hospital again. She is down syndrome...I understood at once. After that, I heard about the complication from my doctor. "She can live five years without the operation. And the operation is half probability of success." "Five years..." My husband and I broke down and cried. I didn't image that my baby had to choose this serious choice. But I was mother. I had to be strong. "Please operate." I remembered I said so clearly. The operation was done well. I believed so...

The operation was success half. It meant that the complication was bad for guessed, so the one time operation couldn't be cured all. But she could come out of the hospital cheerfully. If she was bigger, the second operation would be done. My husband and I cried with joy. "She becomes cheerful." She could live more five years. But my doctor said, "Her healthy condition isn't good yet. So five years will be deadline. When she is five years, the second operation will be done."

Then we three people life started. We spent the pressure days, because she could live till five years old or not. But my husband spent very cheerfully. It was the result that he thought himself. I really thank him. But he cried in his sleep at night, "Kaoru! Kaoru!" I couldn't stop to cry at the side of him. My husband felt the five years pressure too. Next morning I told him about the taking in his sleep. He was surprised and said, "Please accept when I sleep." "Surely I accept." Our conversation was brief, but it was very warm. Crying person was not only I. I remembered I was encouraged from his thought.

Kaoru grew healthy. As if she didn't have any complication, she was cheerful and bright. The figure was fear for me. "The some day, suddenly..." I felt so, and spent with the fear. But in fact I believed Kaoru. I thought only we spent full life between the weak and the strong mind. And I often thought when she was five years old. She could do many things till five years old. I excited when I thought so. I was removed the dark feeling so. "Mother"...Maybe she called so when she was five years old, I thought.

And Kaoru became five years old. The day of the operation at last had come. And she said that she didn't say till then. She said at first when she was anesthetized. "Mother..." I cried as my tears ware as if the violent stream. "You are OK! Surely OK! Trust me! You are cured!" I shouted for my daughter who lost her consciousness.

While the operation, I waited for long and long time. Kaoru fulfilled my wish. She fought the serious disease with the small body. I felt she could fight hard again. I thought I was really happy because of such a brave daughter. There ware many things for these five years. Although the growth was slow, she grew steadily.

...Very long time passed, the lamp of indicating on the operation went out. Her operation was perfect. She was cured. My husband and I shouted unconsciously with hand to hand. After that we wait for her waking up. I felt so long. And she waked up and said, "Mother...Father..." "You are OK! You are cured!" I shouted with the loud voice as the voice resounded whole the hospital. Because I was grad. My husband cried hard.

Now Kaoru is ten years old. She goes to the supported school cheerfully. She said as usually, "Mother." When I hear the word, I remember about the operation. I feel the good things and bad things. But I can say only one thing that dearest life, Kaoru's life bright with great light now. I want to bright her life forever. It is the only desire of greedy me. Kaoru, live.

About a children By Rikako's mother

My first baby (Rikako) was down syndrome.

I understood looking at her at once.

But my husband depressed hard listening down syndrome.

I remembered that we didn't take care of the even normal child, so we worried about growing her of down syndrome.

My husband researched various things, and then Rikako could go to the near day care center.

In the day care center, there was the same old girl (named Miss T) fortunately.

Rikako could join to there, and grew healthy.

Rikako and Miss T were the same class at the day care center, but the different class at the elementary school.

Rikako was the normal class, and Miss T was the supported class.

Six persons, Miss T, her parents, Rikako, my husband, and I ate meals at the family restaurant. We couldn't say anything for Miss T and her parents. We couldn't find out how we said. Miss T's parents spoke less. Then Miss T said, "Rikako is the normal class. I envious."

Rikako answered, "I hate the different class for Miss T"

We ware in trouble.

Miss T's mother said, "Miss Rikako can belong to the normal class because she can study better. You should be grad."

But Rikako said, "I hate."

She spent at the normal class saying hatefully.

The turning point came at the three grades.

Rikako's teacher said, "Miss Rikako is late for study. If she is this pace, she should change to the supported class."

We worry.

And we asked to Rikako.

She answered, "It is OK, the same class with Miss T."

We parents decided.

And Rikako went to the supported class from three grades too.

Rikako went to the school really cheerful.

Although she couldn't study at the normal class, she was impressed to belong to the same class with Miss T.

She was really active.

At weekend Rikako played with Miss T.

Miss T's parents and our parents enjoyed like the day care center period in front of these children like twins. We opened the teatime at the family restaurant regularly. There are the ties that our children made. If we six persons gathered, we cleared any hardships.

Although she carried irregular fate on her back, we are settled the best place.

I want to say the parents for having the child of down syndrome.

"Listen to them for the their things."

They know the all answers.

You should listen to your child's opinion, and treat carefully for the opinion. I think you can get the correct answers in the future, if you consult to your child.

Hero By Kazuo's mother

When Kazuo was bore, my husband's and my parents ware grad very much, because he was the first grandchild. They shouted with joy at the hospital hand in hand. I was said encouraged word.

And we got the notice. The cheerful shouting was stopped, and the grad changed to the dark world as gray cumulonimbus. I couldn't love Kazuo. I thought so honestly. Our parents thought so. Then my husband got angry feeling such a atmosphere, "Why don't you love the baby! The baby is important with any disorder! It is precious life!" I didn't look such his figure ever. He shouted with tears on his eyes. My husband rose up only, and became the friend for Kazuo. He was the hero of justice.

Kazuo is seven years old now. He likes TV program that the hero fight with the bad monsters. Then I say him, "Your father was hero. He protect you at your birth." The direction of my family is that all information open. Don't make the secret at home. This is my husband's direction. So we told Kazuo that he was down syndrome, when he couldn't remember. Rare family is very much. Kazuo doesn't mind such a thing, and he lives hard as one child. "Kazuo is my hero." I said so Kazuo watching TV. He didn't hear because of concentrate on TV. But it is OK. I am blessed with two heroes at his birth.

I think all family is depressed at the birth of children of down syndrome. But perhaps a person will be hero, and support family. That is maybe the mother herself. Surely the hero appeared.

Kazuo goes to the day care center because of remaining the same class. His friends go to the elementary school. There ware various happening at the day care center. He was made fun of or he made fun of. Kazuo made fun of his friend. I encouraged him then. He wasn't only made fun of. I thought in my mind, "Kazuo is hero." It was imprudence.

Kazuo says that he want to be the hero on TV in the future. He says that he trains and becomes the friends of heroes. He skips rope three hundred times everyday. It takes about two hours. He is very hard worker. How does he think about down syndrome? The time comes that the man of down syndrome can be the hero on TV? Japanese welfare can reach that area? My husband surely knows Kazuo says so. My husband says him, "You don't need to give up the dream because of down syndrome. Do the best, and pray the ancestor. Your efforts will be reworded any figure surely." Although it is difficult expression for Kazuo, he understands well.

So Kazuo likes to go to the grave. We go to the grave every weekend for walking. He prays something with his hands together in front of the grave. At the day I asked him, "What did you pray?" I thought he said, "I want to be the hero." But he answered, "I prayed you and father are healthy forever." I wept unconsciously. What a tender boy he is! I thought he was young, but he grew more than my thought. He prayed our health not his dream. I was ashamed to pray every time, "Let Kazuo be one of the heroes." Kazuo is really hero. He is hero defending me. I only pray his future will be bright.

Review By education-conscious mother

My daughter, Keiko is down syndrome.

But I taught hard from young.

I let her teach the character.

I let her use chopsticks.

She understood addition a little.

It was because I wanted her to be the same as the normal children.

It was worth that she could belong to the normal class of the normal school.

But she was late growth at the school.

She couldn't get the high score of the test.

We reviewed surely at the returning the test.

We studied till she could get full score together.

I accepted to watch at the physical education class in particular.

She couldn't rotate the horizontal bar.

Since then I bought the horizontal bar at home, and let her practice that.

It was state that she reviewed the late at the school.

She sometimes cried by hard reviewing.

But I let her review hard.

"You can do the same as the normal children!"

I had sure belief.

At the day Keiko wrote the picture diary of the excursion.

There she wrote, "I was dull at the excursion. Because I can't review with my mother. Mother, I can do the same as the normal children at the excursion. I was cheerful."

...I wept unconsciously.

I can't image that reviewing was changed to be joyful for her. I thought too hard everyday. I felt just embarrassed or not. She felt such a reviewing was joyful. I was surprised her honest. Although the child of down syndrome doesn't have the maliciousness and they are cheerful, I think Keiko is too. I want to support the Keiko's growth as education-conscious mother in the future. At the range within her capacity.

Parents' visiting day By soldier

The other day there was the parents' visiting day at the elementary school.

There ware only several parents because my child belonged to the support class.

The class was understandable really and reviewed a few times.

The class was moral education.

Teacher taught that the knowledge for living in the world, communication for the others, and thought something.

After supported class almost all children would belong to the supported junior high school.

And they work in the future.

Teacher told this flow.

"I want to be flower seller!"

"I must work?"

"Can I choose my favorite work?"

In particular the senior children asked so.

Teacher taught hardly that the wonderfulness of working, they can't choose working free, and the working needed the hardship.

Teacher only let them have a dream, but also taught the real hardships honestly.

"Although you can't choose the work, when you decide the work, work hard. Your efforts are reworded surely. Working means you get the money. You contribute the society, and you can't do it with playing. Although you are more elder, you can understand, it's difficult now? But there is one thing that you remember, the thing is that don't forget for people in the world. You grew till now by the support people in the world. The working is the returning for the people. Surely for the people. Don't forget."

A few parents wept unconsciously.

My child would work in the future.

I was impressed by teacher's words.

My child could work, because my child grew.

The time had come my child work; I thought how my child's future would do at the birth.

But the meeting for parents after the class, teacher changed hard.

"Don't let them make a dream."

Teacher said resolutely.

"The real is hard. Maybe they can work or not. It owe to their growth in the future. Please take care of them for working. And improve their merits. There are many company accept the handicapped persons, so there are various working. Although they are simple work, sewing, assembling, and so on. They can do sewing now, assembling will learn by using the building block. There are many things they can do now. Please teach various things for your child's future. This is war. The war as the childcare. We can't lose."

I was tightened up.

The real was not easy. But we don't need to be depressed. I thought that I took care of my child praying the rewarded day had come.

So what By sister love

I take a bath with my sister from young.

My sister is down syndrome.

So what?

Former my sister was often made fun of.

I continued to protect her. Although I asked with tears, "Don't make fun of!" now I said, "So what?" My sister doesn't be looked down because of down syndrome, really "So what?" She grows slowly but steadily. Although she can't do the same pace as the normal children, but she can do slowly and steadily. But she is more cheerful than the normal children, and she does anything courteous. She has inferior side, but has better side too. Although I noticed the inferior side at the old days, now I am surprised everyday because of her merits.

By the way I had been to public bath together. We washed the body together, and ware into the bath. Then the lady was out of the bath. She looked and hated my sister. "What?" I said. So she said, "The child is down syndrome, isn't she?" I got angry. At the same time I was so sad. "Yes she is. Do you hate her?" I said so. She said, "It's OK. Bye." And she went away, and then I threw the soap to her hard. I can't accept! The behavior was the trouble later. So we can't go to the public bath forever. "Who is wrong?" I got angry for the absurdity. But I thought. I protected my sister.

It is really "So what?" The discrimination is removed? I think that if all persons think so, the discrimination will be removed. I feel that it is important everybody know the various disorder. If there are some people who discriminate knowing that, the people get the punishment from Heaven. Although it is too hard, they can't understand the nature merits of down syndrome. It is very unfortunately, isn't it? I think as if they are pitiful. I feel my sister's merits full. I am happy enough. That lady will die not knowing those merits. She is poor.

"So what?"...Such a time has come when. All people know the obstacle, accept that, and treat as the normal. When do they reach such a revel? I am looking forward to come the time. I am exited.

But I think perhaps the time will not come. I feel so. I think we must defend the person with the obstacle partially. It is a peace of work worth doing. I think for the time come, the star of down syndrome appears, or the merits of handicapped persons are close up, and the mass media treat that. I feel the best there is the handicapped person in family.

Now I work at the local newspaper office. I take charge of the column at the weekend newspaper. I carry the best episode from the family who has the obstacle person. At first I want everybody to know. Then how do they behave, it owe to them. It is all by my power. I expect the discrimination will be removed a little by my efforts. Because I don't want to go back crying with my sister from the public bath.

Eight years By twins mother

I have two children, elder brother Shintaro and younger brother Jiro.

Shintaro is down syndrome.

Shintaro is ten years old, and Jiro is eight years old.

Their heights are almost the same, so they are like twins.

Shintaro belongs to the supported class, and Jiro belongs to the normal class.

Jiro wrote the essay at the day.

"About my brother.

My brother is down syndrome.

Down syndrome is bore one per thousand.

He was selected the one.

Although there are many bad things because of down syndrome,

there are more good things than the bad things.

My brother is very tender, and he is doing anything cheerfully and fine.

So I am cheerfully and fine too.

I should look at his merits.

If so, I can get happiness by thinking for this eight years."

It was the essay that Jiro's eight years was summarized.

Jiro fought various hardships for these eight years. He helped only one when Shintaro was made fun of. I felt I let Jiro trouble about Shintaro. But Jiro thought that he could be happy looking at Shintaro's merits, didn't he? Jiro is the best understandable and teaching person for Shintaro. I think that I am happy to bear Jiro too. I remembered the first baby was down syndrome, so I was confused to get second baby or not. But Jiro's birth was welcome. It was very happy for Jiro's eight years and Shintaro's ten years. I am happy, and I hope the happy days are waited in the future.

I said Jiro so, he said below.

"So it's OK looking at the only merits. If so, you can be more thousand times happy than normal."

Jiro is really reliable second son.

School PA system By brother

My sister is down syndrome.

My sister is one grade at the elementary school. She belongs to the supported class at the same school.

I am sixth grade, so I can't go to school just one year with her.

My sister can't speak well yet, so she can't conversation well.

But she speaks hard.

Such a sister appeared at the school PA system at lunchtime.

M.C. asked her which study she likes.

She answered, "Japanese and physical education" and laughed "Uhuu".

My classmate laughed together listening the school PA system. "She is your sister, isn't she?" My entire classmate asked me. And girls cried out excitedly "Cute!"

Next question "Who do you like in your family?" She answered, "Brother." My classmate laughed again. I became red face with ashamed.

"Do you enjoy school life?" M.C. asked her, she answered, "Uhoo" Although she evaded laughing, in fact she hate the school. She went to the school with hateful. "I hate", it was better saying so.

At last she sang school song hard with only faint memory, and the school PA system had finished.

My classmates like her, and there are classmates who go to look at my sister during the noon recess.

This topic had been talked about in my family. My parents ware grad very much. My sister spoke with prides.

I was told the child of supported class appeared rarely by my teacher later. "When you are at the school, I let her appear the school PA system." I was said so. I was entrusted the meaning that she appeared the school PA system when I am at the school by my teacher. Teacher's regard was success perfectly. I thought that my sister's amiability spread schoolchild, and they understood about down syndrome deeply. They ware not biased, and they looked at my sister as a cheerful girl. Since then they treated my sister very friendly, so my sister looked forward to going school. I thank my teacher. "Defend my sister." I thought I can only do so, but I was noticed it was incorrect. Teacher, classmate, neighbors, all persons support her. My sister was cheerful very much by their support. There are these good spiral, aren't there? After I graduated the school, the children who listened the school PA system protect my sister. I believed that. If I thought so, I was relieved to graduate. I thank everybody.

Camp By family of five

This was the story at summer vacation.

At then I was fifteen years old, and I suggested to my mother.

We wanted to go to camp with my brother who was eleven years old, and my sister who was ten years old of down syndrome.

My mother surely denied for worrying. My father too.

But I want to go by any means. Because it was offer from my sister. She was rare greed, and she rare wanted to go anywhere, but she said at first she went to go. I was desperate to fulfill her desire. "Surely you worry, but she said to go at first time. She said to go to camp with three!"

In conclusion my mother and father accepted worrying.

We ware sent to the camp field by my father by car at the middle of summer vacation. The camp field ware from two hours from my house by car. We could rent the barbecue sets. At once we arrived at the camp field, my parents went home, and we make the tent. I enjoyed it. My sister laughed ever seen "Kyackyakyackya". While we make the tent, she went into the tent and enjoyed there. Tent was completed and we started to prepare for the dinner. My mother and I bought the food at the last day, so we grilled them. My sister ate raw vegetables before not grilled yet. She was seemed very hungry. "Delicious!" she said so and ate all foods. After dinner, we prepared to sleep in the tent. We slept lining up with the sleeping bag.

But the accident was happened at mid night. My sister cried and said, "Where are my mother and father?" I was in trouble. "Today we sleep with only us. The parents are at home." I said so, but she didn't understand. She went out of the tent, and run toward the home. I went after, catch her, and persuaded. "Today we sleep with three. You said you want to go to camp with us!" But she didn't hear saying, "I hate! Fear!" While I had difficulty, one car came toward us slowly. My father was driving seat, and my mother was passenger seat. "I think perhaps these situation." My mother said. The parents had looked after by turns from the hills perking stopping a car. "Father, mother." I was grad and cried unconsciously. Then my sister said, "Sleep with us in the tent!" the opinion was accepted because that was the camp for her. Family of five slept at the tent. We went to the tent, my brother slept deeply despite those confused. We slept closely in the narrow tent. I enjoyed that. I felt the family was one unit. I was at a loss for my sister, but this happiness owed to her. I thanked her in the bottom of my heart. And, my father and mother. I was grad for your child.

No prejudice world By porch

My niece is down syndrome.

I describe the story that my family and niece's family went to the Atami together.

When we enjoyed the self-service dinner in the hotel, I listened the laughing voice. I turned back, the hotelmen ware laughing. Pointing at my niece.

Surely she was different face comparing with the normal child. But morally they laughed? I was surprised at too low level. I felt that I threw the beer bottle. Then I looked at niece's father, he noticed she was laughed, but he was mild and as if saying, "It's OK." There ware niece's sister and brother, they also didn't mind as if saying, "We don't mind that."

I felt the strong ties of family. How hard they experienced till now! How did they those state? And how did they defend niece looked at with the prejudice eyes in the future. But my sister (niece's mother) glared at the hotelmen.

Although I thought various things, my anger wasn't settled. Then my niece ate the popcorn and said, "Delicious!" I hear her talking at first. I was impressed and I looked at my mother unconsciously. My mother nodded "Yes". My niece's growth was too stimulating for me. I wept a little. Niece's sister and brother prided on her. My anger was settled at once.

I felt, "I was healed by niece." Although there ware much hardships, they cleared that supporting each other at the center of niece. And in the future too.

Her sister became the nurse. Because my niece went to the hospital, she yearned the nurse who she met there. There ware the opportunity to treat the child of down syndrome, so she felt a piece of work worth doing and said with joy. There ware no prejudice for the down syndrome at the hospital. Although it was normal, she said that was favorite point. The nurses treat the children of down syndrome more careful than the normal children. Because they know the various hardships. In fact the children of down syndrome are really pretty.

Niece's brother succeeded to the family business. Although it is not any relation to down syndrome, his family supports my niece with mild. His family has no prejudice for my niece. My niece is very happy, so she takes care of his children.

Sister and brother grew well, reflected by my niece as the good meaning.

The other my niece works sewing at the near workshop. The porch that my niece made ware on sale at the bazaar of the workshop. It looks some porch was sold, so she prided. There is not prejudice at the workshop too. My niece's obstacle is light there. So I hear she is as the elder sister of the people at the workshop. She grew finely from healed person to healing person.

My niece has another brother. He works as a teacher at the workshop. My niece and her brother grew as twins, so their ties are very tight and they are very friendly now. He grew tender maybe too tender. He said that the working at the workshop is very meaning and he can work hard because of my niece.

I feel that down syndrome is welcome. I think so in the bottom of my heart.

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